Get Help Now: Resources While You Wait

Practical support, crisis resources, and advocacy tools for families navigating the waitlist

⚡ While these resources can't replace comprehensive therapy, they can provide crucial support during the wait

🚨 Crisis Support Numbers

Ontario Autism Program Urgent Response

For families in crisis needing immediate behavioral support

Hours: 24/7Wait: Response within 30 days

Kids Help Phone

Support for children and youth with autism experiencing crisis

Hours: 24/7Wait: Immediate

Crisis Services Canada

Mental health crisis support for parents and caregivers

Hours: 24/7Wait: Immediate

211 Ontario

211

Information on community and social services

Hours: 24/7Wait: Immediate

💡 Tip: Save these numbers in your phone. Program the urgent response number as a favorite for quick access during crisis situations.

🏥 Interim Therapy Options

Kerry's Place Autism Services

Wait: 2-6 months

Services:

  • ABA therapy
  • Social skills groups
  • Parent training
  • Respite care

Cost:

Fee-for-service, sliding scale available

Locations:

30+ locations across Ontario

Geneva Centre for Autism

Wait: 3-4 months

Services:

  • Diagnostic services
  • Early intervention
  • School support
  • Adult programs

Cost:

$150-250/hour, some subsidized spots

Locations:

Toronto, virtual options available

CHEO Autism Program

Wait: 6-12 months

Services:

  • Assessment
  • Medical consultation
  • Brief intervention
  • Parent coaching

Cost:

Covered by OHIP for medical services

Locations:

Ottawa region

Wait: Varies by program

Services:

  • Assessment
  • Family workshops
  • Social groups
  • Research studies

Cost:

OHIP covered assessments, fee for some programs

Locations:

Toronto, some virtual

Local Public Health Units

Wait: 2-6 months

Services:

  • Speech therapy
  • Infant development programs
  • Preschool speech and language

Cost:

Free

Locations:

Throughout Ontario

📚 School Advocacy Templates

Legal Right: Your child is entitled to appropriate special education services under the Education Act, even while waiting for OAP services.

1. Initial IEP Request Letter

Subject: Request for Individual Education Plan (IEP) Meeting - [Child's Name] Dear [Principal's Name], I am writing to request an Individual Education Plan (IEP) meeting for my child, [Child's Name], who is in [Grade] at [School Name]. [Child's Name] has been diagnosed with Autism Spectrum Disorder and requires educational accommodations and support services to access the curriculum effectively. We are currently on the Ontario Autism Program waitlist (position [X] as of [Date]) with an expected wait time of [X] years. As per the Education Act and Ontario Regulation 181/98, I am requesting that we schedule an IEP meeting within the next 30 days to discuss: 1. Current learning needs and challenges 2. Required accommodations and modifications 3. Available support services (EA support, speech therapy, occupational therapy) 4. Safety planning if applicable 5. Transition planning 6. Communication protocols between home and school I have attached [Child's Name]'s diagnostic report and recent assessments for your review. I am available for a meeting on [provide 3-4 possible dates/times]. I look forward to working collaboratively to ensure [Child's Name] receives appropriate educational support while we await provincial services. Sincerely, [Your Name] [Contact Information] cc: [Special Education Coordinator] [Superintendent of Special Education]

2. Accommodation Request Template

Subject: Request for Specific Accommodations - [Child's Name] Dear [Teacher/Principal Name], Following our IEP meeting on [Date], I am formally requesting the following accommodations for [Child's Name]: SENSORY ACCOMMODATIONS: □ Noise-reducing headphones available □ Movement breaks every [X] minutes □ Fidget tools permitted □ Alternative seating (standing desk, cushion, etc.) □ Reduced fluorescent lighting when possible ACADEMIC ACCOMMODATIONS: □ Extended time for tests (1.5x standard time) □ Tests in quiet/separate location □ Written instructions for all assignments □ Visual schedules and supports □ Break down multi-step assignments □ Use of technology for written output COMMUNICATION ACCOMMODATIONS: □ Daily communication log □ Advance notice of schedule changes □ Visual cues for transitions □ Social stories for new situations □ Peer support/buddy system BEHAVIORAL ACCOMMODATIONS: □ Calm-down space available □ Behavior intervention plan as discussed □ Positive reinforcement system □ Regular check-ins with designated staff These accommodations are supported by the attached clinical recommendations from [Professional's Name and Credentials]. Please confirm receipt and implementation timeline. Thank you for your support, [Your Name]

3. Escalation Letter Template

Subject: Formal Request for Special Education Support - Escalation Dear [Superintendent's Name], I am writing to escalate concerns regarding inadequate special education support for my child, [Child's Name], at [School Name]. Despite multiple requests since [Date], the following critical needs remain unaddressed: 1. [Specific unmet need] 2. [Specific unmet need] 3. [Specific unmet need] Timeline of Previous Requests: - [Date]: Initial IEP request to [Name] - [Date]: Follow-up with [Name] - [Date]: Meeting with [Name] - commitments not fulfilled My child has lost [X] instructional hours due to lack of appropriate support. This violates: - The Education Act (Section 170 - appropriate special education) - Ontario Human Rights Code (duty to accommodate) - PPM 140 (requirement for IEP within 30 days) I am requesting: 1. Immediate implementation of attached accommodation plan 2. Compensatory services for lost instructional time 3. Written response within 10 business days If these needs are not addressed, I will be forced to file formal complaints with: - Ontario Human Rights Commission - Ontario Ombudsman - Ministry of Education Sincerely, [Your Name] cc: School Board Trustee Ministry of Education Special Education Branch [Local MPP]

Pro Tip: Always send these letters via email AND registered mail. Keep all delivery confirmations and responses for your documentation file.

👥 Parent Support Groups

Autism Ontario - Local Chapters

Province-wide network with 25 local chapters offering support groups, workshops, and advocacy

Format: In-person and virtual

Cost: Free membership

Visit Website →

Facebook: Ontario Autism Parents Action Group

8,000+ members sharing resources, advice, and support

Format: Online

Cost: Free

Visit Website →

PACE (Parents as Case Managers)

Training parents to navigate services and advocate effectively

Format: Virtual workshops

Cost: Free

Visit Website →

Family Support Network

Peer support, respite matching, and family events

Format: Regional groups

Cost: Free

Visit Website →

Special Needs Parents Support & Discussion

Weekly drop-in support groups in many communities

Format: In-person

Cost: Free

Visit Website →

💜 Remember: You're not alone. Connecting with other parents who understand can be as important as any therapy.

⚖️ Legal Aid Resources

ARCH Disability Law Centre

Free legal services for disability-related discrimination

Specialty: Human rights complaints, education advocacy

Legal Aid Ontario

Free legal help for low-income families

Specialty: Education law, human rights

Human Rights Legal Support Centre

Free legal assistance for discrimination cases

Specialty: Filing HRTO applications

Pro Bono Ontario

Free legal advice (30 minute consultations)

Specialty: General legal guidance

Justice for Children and Youth

Free legal services for youth under 18

Specialty: Education rights, discrimination

Know Your Rights:

  • • You have the right to file a human rights complaint for free
  • • Schools must provide accommodations under the Human Rights Code
  • • Denying timely medical services may violate Charter rights
  • • You can join class action lawsuits at no upfront cost

📝 How to Document Everything

Essential Documents to Maintain

  • Diagnostic report with date
  • OAP registration confirmation
  • Waitlist position updates (screenshot monthly)
  • All email correspondence with OAP
  • Clinical letters recommending services
  • School IEP and report cards
  • Therapy receipts and invoices
  • Medical reports and assessments
  • Incident reports from school
  • Photos/videos showing regression or challenges

How to Document Effectively

  • Create a dedicated email for autism-related correspondence
  • Use a bound notebook for handwritten notes (courts prefer bound pages)
  • Date and time stamp everything
  • Record names and titles of everyone you speak with
  • Follow up verbal conversations with email summaries
  • Request written confirmation of verbal promises
  • Keep originals, make copies for sharing
  • Back up digital files in multiple locations
  • Use apps like CareZone or MyChart for organization
  • Request your child's file through Freedom of Information annually

What to Track Daily/Weekly

  • Behavioral incidents and triggers
  • Sleep patterns and disruptions
  • Eating and sensory issues
  • Communication attempts and successes
  • Therapy sessions (even private/informal)
  • Medication and side effects
  • School communication and incidents
  • Regression in skills
  • Medical appointments and outcomes
  • Time spent on advocacy/coordination (for legal claims)

Documentation Apps & Tools:

  • 📱CareZone - Medical record organizer
  • 📱MyChart - Hospital records access
  • 📱Evernote - Searchable note-taking
  • 📱Google Drive - Cloud backup

💰 Financial Supports Available Now

Federal Disability Tax Credit

Up to $8,870 tax reduction annually

How: Form T2201 completed by physician

Learn More →

Child Disability Benefit

Up to $2,985/year tax-free

How: Automatic if eligible for DTC

Learn More →

Special Services at Home (SSAH)

Up to $3,000/year

How: Apply through local DSO agency

Learn More →

Assistance for Children with Severe Disabilities

Up to $500/month

How: Apply through MCSS

Learn More →

Jordan's Principle

Covers unmet needs for Indigenous children

How: Apply through ISC

Learn More →

Private Insurance

Varies - typically $5-10K/year

How: Check employer benefits

Learn More →

Trillium Drug Program

Covers medication costs over 4% of income

How: Apply online

Learn More →

💡 Financial Planning Tips:

  • • Apply for ALL programs - they can be combined
  • • Keep every receipt for tax purposes
  • • Medical expenses over 3% of income are tax deductible
  • • Consider a Registered Disability Savings Plan (RDSP)
  • • Document lost wages for potential legal claims

🚨 Your Emergency Action Plan

If You're in Crisis Right Now:

  1. 1

    Call for Immediate Help

    Urgent Response: 1-866-810-8786

    Kids Help Phone: 1-800-668-6868

  2. 2

    Document the Crisis

    Write down what happened, when, triggers, and response

  3. 3

    Contact Your Support Network

    Family doctor, school, support group, respite worker

  4. 4

    Request Emergency Services Letter

    From doctor stating immediate intervention needed

  5. 5

    Escalate to Officials

    Email your MPP, Minister of Children's Services, Ombudsman

Remember: You're not failing as a parent. The system is failing your child. Document everything and keep advocating.

You Shouldn't Have to Navigate This Alone

Join thousands of parents demanding immediate action